Practical Strategies
Having, or caring for someone with a rare condition can feel challenging in many ways. This section discusses some of the ways you may feel, and suggests ways to cope. What works for you will be personal to you so don’t worry if one way doesn’t work, you can try another.
Remember to pop back every now and then as we will be adding more techniques over the coming months.
Managing difficult feelings
Ways to understand and cope with difficult feelings
Managing worry & anxiety
Exercises for coping with anxiety and worry, journalling, self soothing
Managing stress
What is stress, your stress bucket, mindful moments
Wellbeing basics
The foundations for mental wellbeing and finding what works for you
Managing pain & fatigue
Mindfulness for pain, relaxation exercises and befriending your body