About Mental Health & Rare Conditions
The rare journey
This section explores the psychological challenges faced by individuals and family members affected by rare conditions, underscoring the necessity for integrated, psychologically informed care.
Rareminds podcast
Listen to or watch all episodes of our Rareminds Podcast encompassing a variety of issues to do with rare conditions and mental health, including interviews with people impacted by rare conditions sharing their experiences.
Rare minds matter - 2023 mental health & rare conditions survey
This section presents the report, key findings and recommedations from our 2023 ‘Rare Minds Matter’ survey.
Reports & articles
A curated archive of published reports and articles that explore the psychological impact of rare conditions and ways to support.