Welcome to Rareminds

Specialist mental health and wellbeing services for the rare condition community

Support for Individuals

Resources and information to help you live as well as possible with your rare condition

Services for Organisations

We offer a range of services tailored to support the specific needs of rare condition organisations and leaders, industry partners, healthcare professions and rare condition communities.

Counselling Services

A fully managed specialist counselling service for individuals & couples tailored to the needs of specific rare condition communities, delivered exclusively through partnerships with our rare condition groups, charities and organisations.

Wellbeing & Consultancy Services

A wide range of services offering workshops, group programmes, supervision, and tailored therapeutic input for individuals affected by rare conditions, as well as training and support for professionals, volunteers, and event organisers in the rare disease community.

About Us

At Rareminds we believe that everyone impacted by rare conditions (affected individuals, their carers and/or family members) can benefit from and, if needed, should have access to a trained, qualified specialist rare condition counsellor with an understanding of their specific rare condition. 

To achieve this we aim to provide affordable, timely access to highly specialised counselling. We also advocate for recognition of the importance of specialist mental health support by informing policy, practice and promoting standards of excellence.

a group photo of the Rareminds team

Our Charity Partners

Rareminds Podcast

Latest News & Articles

Rareminds new Wellbeing Hub is live!

Whether you have been living with your condition for some time, or if you are currently facing a particularly emotionally challenging period, we hope you find something in our Wellbeing Hub that will be helpful. 

Rareminds attend ‘European Conference on Rare conditions and Orphan Products’ (ECRD)

Rareminds CEO Kym Winter and Head of Development, Lauren Roberts, attended the 12th ECRD, with Kym taking part in a panel discussion about  ‘No...

S1 E1 How rare conditions can impact mental health

Rareminds CEO Kym Winters talks to Stephanie Yin, a psychotherapist on the Rareminds team who also lives with her own rare condition, about the psychological impact and challenges of living with a rare condition, and also how lived experience informs her work.

Rare Minds Matter – Mental Health & Rare Disease Survey Report Published.

Our ‘Rare Minds Matter – Mental Health Survey 2023’ report explores the post-pandemic mental health experiences of the UK’s rare community, shedding light on an often overlooked aspect of living with a rare condition.