News, updates & reflections
Keep up to date with news and views from Rareminds and our partners in the rare condition community
We’re Recruiting!
Join our pioneering clinical service supporting people affected by rare conditions 1 in 17 people in the UK are affected by a rare condition. This brings unique challenges that can impact mental health and wellbeing. Rareminds is a UK-based charity that works...
Reflections from the Rareminds Virtual Clinic #2
A recurring theme we see in our clinic is the gap between diagnosis and ‘next steps’. Some clients have had to digest life-changing news alone. They may have been invited to come back if ‘anything changes', or after having received information by letter or app...
Rare4Schools Parliamentary Reception
Our CEO, Lauren Roberts, and Senior Counsellor, Rebecca Hargreaves, recently attended the Rare4Schools event in Parliament, bringing together policymakers, parliamentarians and organisations from across the rare condition community. Rareminds is proud to...
Reflections from the Rareminds Virtual Clinic
The Communication Gap: Delivering Diagnoses or New Information At Rareminds, much of what we hear in counselling is not always just about the challenges of coping with the condition itself. It often includes exploring (either for the first time, or again, years...
Children’s Commissioner’s Report on Children’s and Young People’s Mental Health Services
10 July 2026 Rareminds is encouraged to see that the Children's Commissioner's fifth and final report on children's and young people's mental health services calls for 'a new vision for childhood, one that doesn't silo mental health away from education, care, or...
Introducing our new Research & Development Lead
We’re pleased to share that Dr Stephanie Yin has stepped into the new role of Research & Development Lead at Rareminds. Created to support our next phase of growth, this role will strengthen how we develop, evidence and share our work across the rare community. It...
EURORDIS position paper on mental health & wellbeing
We are so pleased to have been involved in this much-needed initiative on mental health and wellbeing in the rare condition community by EURORDIS-Rare conditions Europe, led by Matt Bolz-Johnson. The paper emphasises the need for specific actions across all policy...
Article in New Psychotherapist
We are delighted to have featured in the recent UKCP ‘New Psychotherapist’ magazine. Read the article with our Founder Kym Winter on page 37