Rareminds Podcast

Welcome to the Rareminds podcast where we’ll be talking about all sorts of issues to do with rare conditions and mental health. We’ll be talking to a wide range of people impacted by rare conditions, what the challenges are, how you’ve coped and what works for you in terms of looking after your own mental health and wellbeing.

Other life stuff doesn’t stop when you have a rare condition. We believe that talking more openly about how to manage all this while coping with your condition, is in itself a key part of looking after your mental wellbeing.

A huge thanks to our sponsors and supporters

NEW SURVEY

Have you ever tried to access professional mental health support?

 If so, we want to hear about your experiences - what worked, what barriers did you face, what are the gaps? We want to hear from from everyone impacted by rare conditions: affected individuals, parents, carers, partners and family members. You can complete the survey here: