Sources of support

We all need different types of support at different times.

When it comes to support for mental health and wellbeing, there is no ‘one size fits all.’ It’s about what you are struggling with, the type of support you want and need, and what works for you as an individual. This section is to help you think about all the different types of support available, and how to access them.

Rare condition organisations

Connecting with others, how to find the right support for you

General mental health support

Types of therapy & counselling, how to access, support for young people

Practical support

Financial, social care and education support, support for carers

Crisis support

How to access help urgently

Section Guide

9

Diagnosis

9

Uncertainty, change & loss

9

Relationships

9

You & your feelings

9

Coping with pain

9

Fatigue, tiredness & exhaustion

9

Navigating healthcare

9

Sources of support

9

Deciding to have children (or not)

NEW SURVEY

Have you ever tried to access professional mental health support?

 If so, we want to hear about your experiences - what worked, what barriers did you face, what are the gaps? We want to hear from from everyone impacted by rare conditions: affected individuals, parents, carers, partners and family members. You can complete the survey here:

Take the survey