We are so pleased to have been involved in this much-needed initiative on mental health and wellbeing in the rare condition community by EURORDIS-Rare conditions Europe, led by Matt Bolz-Johnson.
The paper emphasises the need for specific actions across all policy areas to address these unique needs. The document highlights the connection between physical and mental health and calls for implementing effective programmes, as supported by the United Nations General Assembly Resolution. It advocates for the inclusion of people living with rare conditions in European mental health policies and urges EU Member States to develop national strategies that integrate psychosocial support into standard medical care.