Fatigue, tiredness & exhaustion
When you are impacted by a rare condition, fatigue, tiredness and exhaustion can be common experiences. This is true for both people affected by rare conditions and those who support them.
Experiences of fatigue, tiredness or exhaustion may be occasional (perhaps at times of a health crisis, or treatment) and for others more ongoing. Whatever the cause, this section aims to help you cope.
Understanding tiredness, fatigue & exhaustion
The causes and signs of tiredness, fatigue and exhaustion
Practical tools and strategies to manage fatigue
Activity scheduling, pacing, spoon theory and others. Managing fatigue in the workplace.
Managing fatigue in the workplace
Self-management strategies, making adjustments and understanding employer’s responsibilites
Sleep difficulties, including in children
Optimising the possibility of sleep, managing difficult thoughts feelings at night, coping with wakefulness, or interrupted sleep
Supporting someone with fatigue
Managing your own energy levels, changes to roles or responsibilities, and managing difficult feelings