{"id":2729,"date":"2024-05-07T14:46:59","date_gmt":"2024-05-07T13:46:59","guid":{"rendered":"https:\/\/www.rareminds.org\/?page_id=2729"},"modified":"2026-08-10T16:43:12","modified_gmt":"2026-08-10T15:43:12","slug":"difficult-feelings","status":"publish","type":"page","link":"https:\/\/www.rareminds.org\/pt\/wellbeing-hub\/practical-strategies\/difficult-feelings\/","title":{"rendered":"Gerir sentimentos dif\u00edceis"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 70%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 73%&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px|5vw|0px||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color_gradient_stops%22%93}&#8221;][et_pb_row make_equal=&#8221;on&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;|2vw|50px|8vw|false|false&#8221; border_radii=&#8221;off|||200px|&#8221; border_width_right=&#8221;14px&#8221; border_color_right=&#8221;gcid-cf9415ef-e483-4e35-a620-b796a7d52716&#8243; box_shadow_style=&#8221;preset4&#8243; box_shadow_horizontal=&#8221;13px&#8221; box_shadow_vertical=&#8221;0px&#8221; box_shadow_color=&#8221;gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2&#8243; 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custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||||false|false&#8221; text_font_size_tablet=&#8221;21px&#8221; text_font_size_phone=&#8221;16px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; header_font_size_tablet=&#8221;43px&#8221; header_font_size_phone=&#8221;28px&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; header_4_font_size_tablet=&#8221;17px&#8221; header_4_font_size_phone=&#8221;15px&#8221; header_4_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span><nav aria-label=\"breadcrumbs\" class=\"rank-math-breadcrumb\"><p><span class=\"last\">Home<\/span><\/p><\/nav><\/span><\/p>\n<h1><\/h1>\n<h1><\/h1>\n<h1>Managing difficult feelings<\/h1>\n<h4>Ways to understand and cope with difficult feelings<\/h4>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Coping-with-Feelings.jpg?_t=1715596575&#8243; title_text=&#8221;Rareminds-Wellbeing-Hub-Website-Mockup-Images-Coping-with-Feelings&#8221; align_tablet=&#8221;left&#8221; align_phone=&#8221;left&#8221; align_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; width=&#8221;350px&#8221; width_tablet=&#8221;200px&#8221; width_phone=&#8221;150px&#8221; width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;right&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;|10px||10px|false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|tablet&#8221; border_radii=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; padding_right_1=&#8221;2vw&#8221; padding_left_2=&#8221;3vw&#8221; padding_top_bottom_link_1=&#8221;false&#8221; padding_top_bottom_link_2=&#8221;false&#8221; padding_left_right_link_1=&#8221;false&#8221; padding_left_right_link_2=&#8221;false&#8221; padding_1_tablet=&#8221;|0px|||false|false&#8221; padding_2_tablet=&#8221;|||0px|false|false&#8221; padding_1_phone=&#8221;|0px|||false|false&#8221; padding_2_phone=&#8221;|||0px|false|false&#8221; padding_1_last_edited=&#8221;on|desktop&#8221; padding_2_last_edited=&#8221;on|desktop&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 75%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 75%&#8221; inner_width_tablet=&#8221;85%&#8221; inner_width_phone=&#8221;85%&#8221; inner_width_last_edited=&#8221;on|tablet&#8221; inner_max_width=&#8221;80%&#8221; inner_max_width_tablet=&#8221;&#8221; inner_max_width_phone=&#8221;&#8221; inner_max_width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;24px|0px||0px|false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22,%22background_color_gradient_stops%22%93}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h5>What makes a feeling \u2018difficult\u2019 is different for all of us.<\/h5>\n<p>It is not only \u2018negative\u2019 feelings such as anger, despair or anxiety that can feel difficult.<\/p>\n<p>When you are impacted by a rare condition, you might have experienced a lot of disappointment, or felt let down. Sometimes having feelings like hope or desire can then feel difficult or anxiety-provoking too.<\/p>\n<p>You might find it helpful to read through the sorts of feelings that are common at <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/diagnosis\/looking-for-a-diagnosis\/\">diagnosis<\/a> as these often re-emerge across the rare journey .<\/p>\n<p><strong>What makes a feeling \u2018difficult\u2019 depends on a number of factors.<\/strong><\/p>\n<p>These include:<\/p>\n<ul>\n<li>how strong the feeling is<\/li>\n<li>if we think we \u2018should or shouldnt\u2019 feel that way<\/li>\n<li>the context of when and where we feel something, or towards whom<\/li>\n<li>worries about what certain thoughts or feelings might \u2018say about us\u2019<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2026\/01\/common-feelings.jpg&#8221; alt=&#8221;The images shows the different types of feelings you can experience with a rare condition. These are envy, loss of confidence, anxiety, resentment, worry, low mood\/depression, frustration, hopelessness, anger, fear, grief and loss, withdrawal, grief and loss.&#8221; title_text=&#8221;common feelings&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2><\/h2>\n<h2>Feelings are not \u2018good or bad\u2019<\/h2>\n<p>Feelings are our brain\u2019s attempt to make sense of what is happening to us in life. They are like \u2018flags\u2019. They try to alert us to our needs and desires, or when we might be in danger of hurt or harm.<\/p>\n<p>It is not always easy to work out what your feelings are trying to \u2018tell you\u2019 about yourself or our life. It\u2019s also not always easy to know how best to respond to them either.<\/p>\n<h5>Try not to \u2018judge\u2019 a feeling. If a feeling is frightening you, or you are worried you might act upon it, remind yourself that you are in control of your feelings, they are not in control of you.<\/h5>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0517feb2-9fa3-4547-87b5-c8030e5975d4&#8243; link_option_url=&#8221;#&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>Sometimes we are frightened of a particular feeling because of the thought that might accompany it. We might then need another person \u2018alongside us\u2019 to help in facing that particular thought or feeling. This could be someone close to you, but it might sometimes feel easier with a more \u2018neutral\u2019 person, like a counsellor.<\/p>\n<p>[\/et_pb_blurb][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Feelings need \u2018air time\u2019<\/h2>\n<p>Feelings are a bit like small children. If we try to ignore them or push them away, they tend to just get louder and more demanding as a result. Sometimes, we don\u2019t want to feel the way we do.<\/p>\n<h5>Learning to accept the feelings we have, be curious about where they are \u2018coming from\u2019, and how best to respond and look after ourselves in the face of them is an important skill.<\/h5>\n<p>Giving our feelings \u2018air-time\u2019 helps them feel \u2018listened to.\u2019 It can also be less tiring overall than trying to keep them at bay.<\/p>\n<p><strong>Examples of giving your feelings \u2018air-time\u2019 might be:<\/strong><\/p>\n<ul>\n<li>Talking to someone you trust, and who is a good listener. This could be a friend, family member or someone from a support group.<\/li>\n<li>Playing music that reflects what you feel such as angry or sad.<\/li>\n<li>Techniques to \u2018ride out\u2019 certain difficult feelings until they pass. We give suggestions <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/practical-strategies\/managing-worry-and-anxiety\/\">here<\/a>.<\/li>\n<li>Journalling or writing down how you feel. This might be regularly, or during times that feel particularly hard or complex.<\/li>\n<li>Painting, drawing or other creative activities. You don\u2019t have to be \u2018any good\u2019 at these as it\u2019s the activity itself that\u2019s helpful.<\/li>\n<\/ul>\n<h2><\/h2>\n<h2><\/h2>\n<h2>When feelings \u2018aren\u2019t helping\u2019<\/h2>\n<p>There may be times when you have to find ways to put your own feelings to one side. This might be in order to deal with a difficult situation, or to look after another person .<\/p>\n<p>Some examples might include if you have to go through a difficult medical procedure (or support a child or partner with one) or when you feel at the edge of your \u2018capacity to cope\u2019 or overwhelmed.<\/p>\n<blockquote>\n<p>I spent the whole night before the operation trying to work out if I could just not go, change my mind, not turn up. It took all my energy to not just \u2018run away\u2019 to be honest.<\/p>\n<\/blockquote>\n<h5>Sometimes when we feel on the \u2018edge of coping\u2019, feelings can erupt out in ways we don\u2019t always feel good about later.<\/h5>\n<blockquote>\n<p>My son sometimes gets into a \u2018loop\u2019 of arguing that is exhausting. I know he can\u2019t help it, but sometimes I just want to scream.<\/p>\n<\/blockquote>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;0c38199e-3a1d-4d5d-826d-ef93f305cb70&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>What helps?<\/h2>\n<h3>Try to recognise when you are \u2018on the edge of coping\u2019.<\/h3>\n<p>\u2018Take a breath\u2019 &#8211; use a simple calming technique such as <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/practical-strategies\/managing-worry-and-anxiety\/#box-breathing\" target=\"_blank\" rel=\"noopener\">Box Breathing<\/a>.<\/p>\n<p>If you can, let someone know how you are feeling and ask for support.<\/p>\n<h3>Could something be \u2018paused\u2019 temporarily?<\/h3>\n<p>Could someone take over for you a while in responding to a child, or supporting a loved one?<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Difficult experiences<\/h2>\n<p>A difficult experience (perhaps on your rare journey) can influence the degree of fear or anxiety you feel in certain situations. This might be particularly if your feelings at the time were also ignored or minimised.<\/p>\n<p>A difficult experience can make it difficult to accurately \u2018trust\u2019 your feelings going forward. If this has been the case, it&#8217;s ok to let others know that you might be \u2018extra\u2019 worried , frightened or anxious for good reason. They can then take this into account with how they support you going forward.<\/p>\n<h5><strong>Re-building confidence again in both your own perceptions, and the care of others, can take time.<\/strong><\/h5>\n<p>Treat yourself gently. Things can be different.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>When feelings are biologically driven<\/h2>\n<p>Some rare conditions or medications and treatments can impact you neurologically or hormonally.<\/p>\n<p>This can then also affect how you (or someone you look after) feels, or the type and intensity of emotions that are experienced.<\/p>\n<p>Trusting your feelings (and other people, or situations) as \u2018accurate\u2019 is then also harder as a result too.<\/p>\n<p>If this is an aspect of the rare condition you are impacted by, talk it through with your rare condition doctor about how best to manage this. There may be a range of strategies or approaches to help you cope with difficult emotions, moods or behaviour.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>You are not your feelings<\/h2>\n<p>Sometimes, we confuse \u2018who we are\u2019 with \u2018how we feel&#8217;.<\/p>\n<h5>Being able to notice and describe the feeling you are having gives you more control over it.<\/h5>\n<p>This helps it to \u2018loosen its grip\u2019 on you. For example, saying \u2018I am frightened\u2019 defines the whole of you as afraid. Instead try saying \u2018I feel frightened\u2019. This means that part of you is \u2018observing\u2019 your fear, and can help you better manage your fear.<\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0517feb2-9fa3-4547-87b5-c8030e5975d4&#8243; link_option_url=&#8221;#&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>Notice when yourself describing an emotion as \u2018I am\u2026.\u2019,\u00a0 what feels different if instead you say \u2018I feel\u2026..?\u2019<\/p>\n<p>[\/et_pb_blurb][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Mixed emotions<\/h2>\n<h5>Feelings are messy. It\u2019s not often we have just \u2018one\u2019 feeling about someone or something.<\/h5>\n<p>You may feel that something is a positive thing to do (such as having a particular operation or treatment) but also be scared, want to avoid it, or wish it were different.<\/p>\n<h5>Mixed feelings towards the people we care about \u2013 or for &#8211;\u00a0 are also very common.<\/h5>\n<p>However, this can sometimes feel very shameful. Parent-carers and partners in particular often experience strong \u2018mixed feelings\u2019 towards their partner or child, or about the situation they are in.<\/p>\n<p>Becoming \u2018more comfortable\u2019 or accepting of your own mixed feelings can be very helpful, and also a relief. They do not mean you are a \u2018bad person.\u2019<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0c38199e-3a1d-4d5d-826d-ef93f305cb70&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Coping with difficult feelings<\/h2>\n<h3>Notice what and how you are feeling<\/h3>\n<ul>\n<li>How does the \u2018feeling feel? This might be physically.<\/li>\n<li>Try to identify and name the feeling (or feelings).<\/li>\n<li>You are now \u2018observing\u2019 a feeling, rather than being \u2018in the grip\u2019 of it.<\/li>\n<\/ul>\n<h3>Accept the feeling, rather than deny it or push it away.<\/h3>\n<ul>\n<li>This might feel uncomfortable, or a relief.<\/li>\n<li>Ask yourself \u2018why am I feeling like this?\u2019 Sometimes this might be very obvious. At other times, less so.<\/li>\n<li>Remind or reassure yourself that all feelings pass. This is the case for both pleasant and unpleasant feelings.<\/li>\n<\/ul>\n<h3>What do you need to help the feeling be manageable, or pass?<\/h3>\n<p>This might include breathing exercises, mindfulness techniques, talking to someone you trust, or a self-soothing strategy.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>When to seek additional help<\/h2>\n<p>At times we all need to \u2018check out\u2019 how we are feeling with people who we feel safe with and who know what we have been through. How best to understand, and find ways of managing, difficult feelings often happens most effectively with the help of people we trust. These might include friends or family, healthcare professionals, support groups, and professionals like psychologists or counsellors.<\/p>\n<p>&nbsp;<\/p>\n<h2>If you feel in crisis<\/h2>\n<p>Should you feel overwhelmed emotionally, or like you might harm yourself or another person, do reach out &#8211; there are organisations that can <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/sources-of-support\/crisis-support\/\">help<\/a>.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin=&#8221;||||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;5%|5%|5%|5%|true|true&#8221; custom_padding_tablet=&#8221;8%||||false|true&#8221; custom_padding_phone=&#8221;20%|5%|9%|5%|false|true&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; custom_css_before=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22%93}&#8221; custom_css_before_tablet=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; custom_css_before_phone=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||border-radius: 0 0 0 30px;&#8221; custom_css_before_last_edited=&#8221;on|phone&#8221;]<\/p>\n<h2>Useful books &amp; resources<\/h2>\n<p><em><strong>How to stay sane<\/strong><\/em> by Phillipa Perry.<\/p>\n<p><em><strong>Why has no one told me this before?<\/strong><\/em> by Julie Smith.<\/p>\n<p><em><strong>Full Catastrophe Living: How to cope with stress, pain and illness using mindfulness<\/strong><\/em> by Jon Kabat-Zinn.<\/p>\n<h5>Resources:<\/h5>\n<p><a href=\"https:\/\/www.oxfordhealth.nhs.uk\/wp-content\/uploads\/2020\/03\/OH-196.20-Managing-strong-emotions.pdf\" target=\"_blank\" rel=\"noopener\">Oxford Health NHS Trust<\/a> have produced a really practical free guide and workbook to help cope with strong feelings.<\/p>\n<p>The <a href=\"https:\/\/www.mind.org.uk\/information-support\/a-z-mental-health\/\" target=\"_blank\" rel=\"noopener\">MIND<\/a> website has a range of leaflets and advice about coping with common difficult feelings, experiences and daily life generally.<\/p>\n<p>You can read more about Mindfulness on the <a href=\"https:\/\/www.nhs.uk\/mental-health\/self-help\/tips-and-support\/mindfulness\/\" target=\"_blank\" rel=\"noopener\">NHS website<\/a>.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][pac_divi_table_of_contents title=&#8221;Contents&#8221; collapse_when_sticky=&#8221;on&#8221; marker_position=&#8221;outside&#8221; level_markers_2=&#8221;icons&#8221; icon_marker_2=&#8221;&#x5e;||divi||400&#8243; indent_amount_2=&#8221;0px&#8221; allow_collapse_minimize_tablet=&#8221;off&#8221; allow_collapse_minimize_phone=&#8221;on&#8221; allow_collapse_minimize_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; sticky_position_phone=&#8221;none&#8221; sticky_position_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22title_container_bg_color%22%93,%22gcid-cf9415ef-e483-4e35-a620-b796a7d52716%22:%91%22body_area_text_link_color__hover%22%93}&#8221;][\/pac_divi_table_of_contents][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|700|||||||&#8221; header_2_line_height=&#8221;2em&#8221; header_3_font_size=&#8221;23px&#8221; header_5_font=&#8221;|700|||||||&#8221; header_5_text_color=&#8221;#82c398&#8243; header_5_font_size=&#8221;20px&#8221; header_5_line_height=&#8221;2em&#8221; width=&#8221;250px&#8221; custom_margin=&#8221;||26px||false|false&#8221; custom_padding=&#8221;|||15px|false|false&#8221; sticky_limit_bottom=&#8221;body&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; header_2_line_height_tablet=&#8221;2em&#8221; header_2_line_height_phone=&#8221;1.4em&#8221; header_2_line_height_last_edited=&#8221;on|phone&#8221; header_5_font_size_tablet=&#8221;20px&#8221; header_5_font_size_phone=&#8221;16px&#8221; header_5_font_size_last_edited=&#8221;on|phone&#8221; header_5_line_height_tablet=&#8221;2em&#8221; header_5_line_height_phone=&#8221;1.5em&#8221; header_5_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Related pages<\/h3>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Managing difficult feelings&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MjkifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Ways to understand and cope with difficult feelings<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Managing worry &#038; anxiety&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjUwODIifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Exercises for coping with anxiety and worry, journalling, self soothing<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Managing stress&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MzgifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p><span style=\"font-weight: 400;\">What is stress, your stress bucket, mindful moments<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Managing pain &#038; fatigue&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjUxMDIifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Mindfulness for pain, relaxation exercises and befriending your body<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Wellbeing basics&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3NDUifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>The foundations for mental wellbeing and finding what works for you.<\/p>\n<p>[\/et_pb_blurb][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|700|||||||&#8221; header_2_line_height=&#8221;2em&#8221; header_3_font_size=&#8221;23px&#8221; header_5_font=&#8221;|700|||||||&#8221; header_5_text_color=&#8221;#82c398&#8243; header_5_font_size=&#8221;20px&#8221; header_5_line_height=&#8221;2em&#8221; width=&#8221;250px&#8221; custom_margin=&#8221;32px||26px||false|false&#8221; custom_padding=&#8221;|||15px|false|false&#8221; sticky_limit_bottom=&#8221;body&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; header_2_line_height_tablet=&#8221;2em&#8221; header_2_line_height_phone=&#8221;1.4em&#8221; header_2_line_height_last_edited=&#8221;on|phone&#8221; header_5_font_size_tablet=&#8221;20px&#8221; header_5_font_size_phone=&#8221;16px&#8221; header_5_font_size_last_edited=&#8221;on|phone&#8221; header_5_line_height_tablet=&#8221;2em&#8221; header_5_line_height_phone=&#8221;1.5em&#8221; header_5_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Section guide<\/h3>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Diagnosis&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x39;||divi||400&#8243; icon_color=&#8221;#000000&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-section-title&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; header_font_size=&#8221;1rem&#8221; header_letter_spacing=&#8221;1px&#8221; header_line_height=&#8221;1.3em&#8221; body_font_size=&#8221;16px&#8221; custom_padding=&#8221;5px|10px|||false|false&#8221; animation=&#8221;off&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjIyNDUifX0=@&#8221; header_font_size_tablet=&#8221;1.1em&#8221; header_font_size_phone=&#8221;1.1em&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; custom_css_main_element=&#8221;width: 250px&#8221; custom_css_blurb_title=&#8221;padding-top: 6px||&#8221; border_radii=&#8221;on|15px|15px|15px|15px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color__hover%22%93}&#8221; background__hover_enabled=&#8221;on|hover&#8221; 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It is not only \u2018negative\u2019 feelings such as anger, despair or anxiety that can feel difficult. When you are impacted by a rare condition, you might have experienced a lot of disappointment, or [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":2726,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"footnotes":""},"folder":[35],"class_list":["post-2729","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/pages\/2729","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/comments?post=2729"}],"version-history":[{"count":24,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/pages\/2729\/revisions"}],"predecessor-version":[{"id":6092,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/pages\/2729\/revisions\/6092"}],"up":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/pages\/2726"}],"wp:attachment":[{"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/media?parent=2729"}],"wp:term":[{"taxonomy":"folder","embeddable":true,"href":"https:\/\/www.rareminds.org\/pt\/wp-json\/wp\/v2\/folder?post=2729"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}