{"id":2700,"date":"2024-05-07T10:06:49","date_gmt":"2024-05-07T09:06:49","guid":{"rendered":"https:\/\/www.rareminds.org\/?page_id=2700"},"modified":"2026-08-10T16:40:17","modified_gmt":"2026-08-10T15:40:17","slug":"parenting","status":"publish","type":"page","link":"https:\/\/www.rareminds.org\/de\/wellbeing-hub\/relationships\/parenting\/","title":{"rendered":"Kindererziehung"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 70%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 73%&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px|5vw|0px||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color_gradient_stops%22%93}&#8221;][et_pb_row make_equal=&#8221;on&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;|2vw|50px|8vw|false|false&#8221; border_radii=&#8221;off|||200px|&#8221; border_width_right=&#8221;14px&#8221; border_color_right=&#8221;gcid-cf9415ef-e483-4e35-a620-b796a7d52716&#8243; box_shadow_style=&#8221;preset4&#8243; box_shadow_horizontal=&#8221;13px&#8221; box_shadow_vertical=&#8221;0px&#8221; box_shadow_color=&#8221;gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2&#8243; 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custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||||false|false&#8221; text_font_size_tablet=&#8221;21px&#8221; text_font_size_phone=&#8221;16px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; header_font_size_tablet=&#8221;43px&#8221; header_font_size_phone=&#8221;28px&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; header_4_font_size_tablet=&#8221;17px&#8221; header_4_font_size_phone=&#8221;15px&#8221; header_4_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span><nav aria-label=\"breadcrumbs\" class=\"rank-math-breadcrumb\"><p><span class=\"last\">Home<\/span><\/p><\/nav><\/span><\/p>\n<h1><\/h1>\n<h1><\/h1>\n<h1>Parenting<\/h1>\n<h4><span style=\"font-weight: 400;\">Ways to recharge, supporting siblings, coping with difficult behaviours<\/span><\/h4>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/05\/Relationships-graphic.jpg?_t=1715604773&#8243; title_text=&#8221;Relationships-graphic&#8221; align_tablet=&#8221;left&#8221; align_phone=&#8221;left&#8221; align_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; width=&#8221;350px&#8221; width_tablet=&#8221;200px&#8221; width_phone=&#8221;150px&#8221; width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;right&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;|10px||10px|false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|tablet&#8221; border_radii=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; padding_right_1=&#8221;2vw&#8221; padding_left_2=&#8221;3vw&#8221; padding_top_bottom_link_1=&#8221;false&#8221; padding_top_bottom_link_2=&#8221;false&#8221; padding_left_right_link_1=&#8221;false&#8221; padding_left_right_link_2=&#8221;false&#8221; padding_1_tablet=&#8221;|0px|||false|false&#8221; padding_2_tablet=&#8221;|||0px|false|false&#8221; padding_1_phone=&#8221;|0px|||false|false&#8221; padding_2_phone=&#8221;|||0px|false|false&#8221; padding_1_last_edited=&#8221;on|desktop&#8221; padding_2_last_edited=&#8221;on|desktop&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 75%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 75%&#8221; inner_width_tablet=&#8221;85%&#8221; inner_width_phone=&#8221;85%&#8221; inner_width_last_edited=&#8221;on|tablet&#8221; inner_max_width=&#8221;80%&#8221; inner_max_width_tablet=&#8221;&#8221; inner_max_width_phone=&#8221;&#8221; inner_max_width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;24px|0px||0px|false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22,%22background_color_gradient_stops%22%93}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin=&#8221;||25px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Parenting is not an easy job at the best of times.<\/p>\n<p>Parenting a child with a rare condition can add new considerations that you might not have had to think about before. Rare conditions vary in their intensity and impact, and even the same condition can impact different people in different ways.<\/p>\n<p>Every child is unique, as are you as their parent. Although your experience of parenting may be different (to varying degrees) to the one you might have had in mind, it can still be very rewarding and meaningful.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][et_pb_video src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2025\/01\/Talking-with-your-child-english.mp4&#8243; src_webm=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2025\/01\/Talking-with-your-child-english.webm&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; border_width_all=&#8221;1px&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_video][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>A different life to the one you had imagined<\/h2>\n<p>When your child is first diagnosed with a rare condition, many parents describe feeling like their world turned \u2018upside-down\u2019. There can be a lot of unknowns, particularly at the start.<\/p>\n<p>You may have all sorts of questions or worries about the future, and how they \u2013 and you \u2013 will cope.<\/p>\n<p>When your child receives a diagnosis of a rare condition, you might find yourself grieving. This is the sadness of being obliged to \u2018re-imagine\u2019 a future where this condition will be part of their &#8211; and your &#8211; lives going forward.<\/p>\n<p>Believing that the future can still be good (even if it is not what you imagined it would be) is all part of coming to terms with a diagnosis.There will also be people and organisations there to support you.<\/p>\n<blockquote>\n<p>I was so angry this was going to be part of her, our, life now. But actually, we\u2019ve all kind of got used to it. Sometimes it\u2019s a problem, other times less so. It\u2019s just our life.<\/p>\n<\/blockquote>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<iframe style=\"border-radius:12px\" src=\"https:\/\/open.spotify.com\/embed\/episode\/5JAfjrCJwHnR69nfaotey3?utm_source=generator\" width=\"100%\" height=\"352\" frameBorder=\"0\" allowfullscreen=\"\" allow=\"autoplay; clipboard-write; encrypted-media; fullscreen; picture-in-picture\" loading=\"lazy\"><\/iframe>[\/et_pb_code][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Families come in all shapes and sizes<\/h2>\n<h5>Solo parenting<\/h5>\n<p>Not having someone else to talk decisions over with, or help manage the day-to-day can mean that you are managing a lot. The feeling of it \u2018all being down to you\u2019 can be very stressful. If you are in this situation, building a good support network is particularly important for your emotional wellbeing.<\/p>\n<p>Organisations like <a href=\"https:\/\/www.gingerbread.org.uk\/\" target=\"_blank\" rel=\"noopener\">Gingerbread<\/a> that support single parents can also be very helpful.<\/p>\n<h5>Co-parenting &amp; step-parenting<\/h5>\n<p>There may be times when you feel unsure about your role in a child&#8217;s care, such as whether or not you should attend medical appointments with them. There are no right and wrongs in this situation. Starting with what a child or young person wants is the most important.<\/p>\n<p><a href=\"https:\/\/www.familylives.org.uk\/advice\/your-family\/stepfamilies\" target=\"_blank\" rel=\"noopener\">Family Lives<\/a> provides a range of advice and information about becoming a blended family and step-parenting.<\/p>\n<h5>Same-sex or non-binary couples<\/h5>\n<p>If you are in a same-sex or non-binary couple you may find that professionals make assumptions about you or your family life. It can be helpful to let them know in advance how everyone in a family is related, and how you all like to be referred to.<\/p>\n<p><a href=\"https:\/\/www.proud2bparents.co.uk\/\" target=\"_blank\" rel=\"noopener\">Proud2bParents<\/a>\u00a0 is based in the north-east. They have lots of advice and support for LGBT+ parents, carers and their families, including different ways to become a parent.<\/p>\n<p><a href=\"https:\/\/contact.org.uk\/help-for-families\/information-advice-services\/health-medical-information\/rare-conditions\/\" target=\"_blank\" rel=\"noopener\">Contact<\/a>\u00a0provides a range of support for parents of disabled children, including rare conditions.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Different ways to start a family, or have more children<\/h2>\n<p>Deciding to start a family or have more children can be an exciting time. It is no different when you are impacted by a rare condition, but there may be more issues to think about and to plan around.<\/p>\n<p>If your condition is genetic, this might include considering ways to have a baby that does not pass your condition on. Different people have different feelings about this, and any decision about this will be very personal to you as an individual, and\/or couple.<\/p>\n<p>Some genetic conditions impact more severely than others. If you are affected by certain conditions, it is possible to consider &#8216;assisted conception&#8217;. This is a way to help you have a baby that does not carry a particular condition. There are different types of eligibility criteria for this on the NHS. Start by asking your rare condition doctor what might be possible for you and your condition.<\/p>\n<p><strong>Types of assisted conception include:<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.arc-uk.org\/tests-explained\/prenatal-genetic-screening-tests\/\" target=\"_blank\" rel=\"noopener\">prenatal testing<\/a><\/li>\n<li><a href=\"https:\/\/geneticalliance.org.uk\/preimplantation-genetic-testing\/\" target=\"_blank\" rel=\"noopener\">PGT pre-implantation testing<\/a> (a special type of IVF)<\/li>\n<li>using donor egg or sperm<\/li>\n<\/ul>\n<p>Adoption is also another way to consider having a child, or more children. You can find out more from Adoption UK <a href=\"https:\/\/www.adoptionuk.org\/\" target=\"_blank\" rel=\"noopener\">here.<\/a><\/p>\n<p><a href=\"https:\/\/www.guysandstthomas.nhs.uk\/our-services\/assisted-conception-unit-acu\" target=\"_blank\" rel=\"noopener\">Guys and St Thomas Hospital<\/a> have more information about the different types of assisted conception.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>It&#8217;s \u2018who you are\u2019 that\u2019s important\u00a0<\/h2>\n<p>Depending on the rare condition that your child is impacted by, it will impact them (physically and emotionally) as a unique individual. Its impact may be very visible and apparent to others, or more hidden. Both can have its own challenges .\u00a0<\/p>\n<p>Our society often encourages us to believe our value is based on what we can \u2018do\u2019, not on who we are.<\/p>\n<p>As your child becomes more aware of their rare condition and potential \u2018difference\u2019 (whether visible or not) it\u2019s important to build their confidence that they are loved and appreciated for \u2018who they are\u2019, not what they can \u2018do\u2019, or how they look. This is actually an important message for all of us!<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Recognise you are doing your best<\/h2>\n<p>\u2018Parental guilt\u2019 and \u2018negative bias\u2019 often mean we focus too much on the aspects of parenting where we feel we aren\u2019t doing very well. In reality, it\u2019s likely that you and your child are both probably doing as well as you can, sometimes under very difficult circumstances.<\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0517feb2-9fa3-4547-87b5-c8030e5975d4&#8243; link_option_url=&#8221;#&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>When you notice you are being hard on yourself, try to hold onto the idea of yourself as a parent who is \u2018good enough\u2019.<\/p>\n<p>[\/et_pb_blurb][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Connecting with others<\/h2>\n<p>Meeting other parents who have children with the same \u2013 or a similar \u2013 rare condition can help support your own mental wellbeing, and help you feel less alone.<\/p>\n<p>You might also be able to pick up helpful practical strategies, tips and ideas for supporting your child with their particular needs.<\/p>\n<p>&nbsp;<\/p>\n<ul>\n<li><strong>Rare-condition organisations<\/strong> sometimes offer support or peer groups for parents, and parenting skills workshops. These might be face-to-face, or online. You can be involved as much or as little as you like.\n<\/li>\n<li><strong>Local groups<\/strong> for parents of children with special educational needs, disabilities, or with neurodiversity might also be happening in your local area. Your GP, library or social worker might have details. You can also check the SEN Local Offer of your Local Authority website.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Self-care isn\u2019t selfish<\/h2>\n<p>It\u2019s not easy to keep your own mental (and physical) wellbeing in mind, particularly when you are a parent-carer. Your needs might all too often become last on the list even though it is likely to be you who keeps the \u2018show on the road\u2019!<\/p>\n<p>&nbsp;<\/p>\n<h5>Your health and wellbeing is important not just for you as an individual, but also to help you look after those you care about.<\/h5>\n<p>&nbsp;<\/p>\n<p>When you are \u2018giving out a lot\u2019 emotionally, you need time to refill your \u2018energy tanks\u2019. These are both emotional and physical. We all \u2018recharge\u2019 in different ways.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<blockquote>\n<p>I was starting to burn-out trying to keep on top of everything. Accepting I had limits didn\u2019t come easy. It\u2019s still not great, but I\u2019ve made a few changes, let some things go a bit. I don\u2019t feel quite so overwhelmed.<\/p>\n<\/blockquote>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;0c38199e-3a1d-4d5d-826d-ef93f305cb70&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Ways to \u2018recharge your energy tank\u2019<\/h2>\n<h3>Remind yourself of the \u2018wellbeing basics.\u2019<\/h3>\n<ul>\n<li>Think of looking after your mental wellbeing as an ongoing project. Even being able to do just some of these things can make a difference to your mental health.\u00a0 See our <a href=\"\/wellbeing-hub\/practical-strategies\/\">Wellbeing basics<\/a> section for more tips.<\/li>\n<\/ul>\n<h3>Make time to do something you enjoy everyday.<\/h3>\n<ul>\n<li>This only has to be small if a day is pressured. It could be a short walk, a warm bath, 10 min nap, calling a friend or a good cup of coffee. A little can go a long way.<\/li>\n<\/ul>\n<h3>Make strategic choices about how much you can do each day.<\/h3>\n<ul>\n<li>You can\u2019t do everything. Accept that some things may not be able to be done when, or how, you would like (we know this might feel hard).<\/li>\n<\/ul>\n<h3>Make time for your own physical healthcare.<\/h3>\n<ul>\n<li>This can easily get \u2018lost\u2019 when you are looking after the needs of others. This includes keeping up with your own doctors or health appointments.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Time together and time apart<\/h2>\n<p>If your child has high or particular care needs it can be challenging to find services or people that you can leave them with.<\/p>\n<p>When it is possible however (even for an hour or so) it means you have valuable time to focus on your own emotional and physical wellbeing needs. It also means your child also has the opportunity to learn, or expand, their communication and relating skills by being with that other person.<\/p>\n<p>You might at other times benefit from re-connecting as a family away from your usual environment or routines. Days out and short breaks can be ways to have fun and just enjoy being together in a relaxed or supportive setting.<\/p>\n<p>&nbsp;<\/p>\n<h5>Who could help?<\/h5>\n<ul>\n<li><strong>Family and friends<\/strong> might be your first port of call.<\/li>\n<li><strong>If you have a social worker<\/strong>, ask them for help and advice as to what additional support you might be entitled to, or is available locally.<\/li>\n<li><a href=\"https:\/\/www.barnardos.org.uk\/get-support\/support-for-parents-and-carers\/short-break-care\" target=\"_blank\" rel=\"noopener\">Barnardos<\/a> provide a \u2018short-break care\u2019 search facility (by postcode) for parents of disabled children. This can include overnight care, weekend breaks away, or after-school clubs.<\/li>\n<li><a href=\"https:\/\/sandcastletrust.org\/how-we-support\/\" target=\"_blank\" rel=\"noopener\">The Sandcastle Trust<\/a> provides opportunities for family fun and respite to help families build positive memories, strengthen family relationships, reduce isolation, and improve mental wellbeing and resilience.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Supporting siblings<\/h2>\n<p>Trying to balance the various needs of all your family members (including your own) might sometimes feel like you are being pulled in lots of different directions at the same time. There can be a lot to juggle, especially if your child\/ren have high daily care needs.<\/p>\n<p>A lot of adult siblings of people with disabilities or health conditions say that it has really shaped who they are. Many say they are very \u2018tuned in\u2019 and caring towards other people&#8217;s needs. These are great qualities to develop. It might also mean however, that they are sometimes better at putting other people&#8217;s needs before their own.<\/p>\n<h5>Managing \u2018sibling rivalry and relationships<\/h5>\n<p>Siblings without a rare condition may not appreciate that their brother or sisters \u2018day out at hospital with Mum\u2019 is not necessarily fun. They will only be aware that their sibling had you \u2018all too themselves\u2019, and probably time off school to \u2018go out\u2019 (even if that was to a hospital appointment).<\/p>\n<p>If a member of the family has behaviour that can be difficult, this might mean that family life can sometimes get fraught. Children can find it very unfair when they are expected to be more grown up in relation to a sibling with relational or behavioural difficulties, or particular care needs.<\/p>\n<p>At other times, they may be anxious about how their sibling \u2013 or they \u2013 are seen at school, or by their friends. They may feel protective, but possibly embarrassed (and guilty) too.<\/p>\n<p>Children do not always express their feelings verbally. Be aware that difficult feelings can sometimes be shown, either through physical health problems like tummy aches, or in the way they behave such as becoming more clingy, angry or quiet.<\/p>\n<h5>Ways to support siblings<\/h5>\n<ul>\n<li>Try to make focussed time just with your child\/ren who do not have a rare condition.<\/li>\n<li>Let them know it&#8217;s normal and understandable to have mixed or difficult feelings about their siblings from time-to-time.<\/li>\n<li>Let them know that when one person in a family has a rare condition, everyone is impacted in their own way.<\/li>\n<\/ul>\n<p>Make sure they know (age-appropriately) what the rare condition is that their sibling has, and any other information about how it impacts them. This will also help them explain it to friends if they need or want to.<\/p>\n<p>Acknowledge how family routines and responsibilities might be impacted as a result of a rare condition and that sometimes this will be frustrating.<\/p>\n<p><a href=\"https:\/\/www.sibs.org.uk.\" target=\"_blank\" rel=\"noopener\">SIBS<\/a> has various resources and forums for siblings of disabled children.<\/p>\n<p><a href=\"https:\/\/www.carersfirst.org.uk\/young-carers\/\" target=\"_blank\" rel=\"noopener\">Young Carers<\/a> provide support groups and information for young people with caring responsibilities.<\/p>\n<p><a href=\"https:\/\/rarechromo.org\/media\/familyguides\/English\/Supporting%20Siblings%20of%20Children%20with%20a%20Rare%20Genetic%20Condition%20FTNW.pdf\" target=\"_blank\" rel=\"noopener\">Unique<\/a> has an excellent guide to supporting siblings of children with a rare genetic condition.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Unusual or difficult behaviour<\/h2>\n<p>If your child shows difficult or unusual behaviour, it is often a \u2018communication\u2019 of some sort. If your child is non-verbal, their behaviour will also be their main form of communication.<\/p>\n<p>Unusual or difficult behaviour may also be your child&#8217;s preferred way of \u2018self-soothing\u2019 to help them to cope with feelings, or \u2018sensory overload.\u2019<\/p>\n<p>However, difficult or unusual behaviour is not always straightforward to \u2018interpret\u2019 for any child. This can feel frustrating for both you and them.<\/p>\n<p><strong>Their behaviour may be:<\/strong><\/p>\n<ul>\n<li><strong>Biologically driven<\/strong> by the condition itself, or pain and discomfort.<\/li>\n<li><strong>Emotionally driven<\/strong> by stress, anxiety or frustration.<\/li>\n<li><strong>Developmentally driven<\/strong> as a result of \u2018growing-up\u2019 and needing to establish more independence.<\/li>\n<\/ul>\n<h5>Types of difficult behaviour<\/h5>\n<ul>\n<li>violence or aggression (towards themselves, or others)<\/li>\n<li>regression (behaving in ways that are younger again in relation to sleep, or toileting etc)<\/li>\n<li>not wanting to be left alone, or with other people<\/li>\n<li>difficulty in behaving appropriately in public<\/li>\n<li>not being able to settle or sleep<\/li>\n<li>repetitive movements<\/li>\n<li>being very rigid about certain foods, behaviour or experiences<\/li>\n<\/ul>\n<p>Your child\u2019s behaviour might bring up a lot of challenging feelings for you as a parent. You might also at times feel embarrassed or upset by how other people respond to &#8211; or make assumptions about &#8211; your parenting skills.<\/p>\n<p>It can be very hard to acknowledge times when you might not like your child very much (however much you love them), or times when you feel overwhelmed, or have \u2018had enough.\u2019<\/p>\n<p>You won\u2019t be alone in feeling like this.<\/p>\n<h5>Ways to cope<\/h5>\n<p>Understanding the reasons behind why your child is behaving as they are can help you cope, and also respond more effectively.<\/p>\n<p>This can take time, and finding strategies that help won&#8217;t necessarily happen overnight:<\/p>\n<ul>\n<li><strong>Talk to other rare-condition parents, healthcare professionals, and use research<\/strong> to help you work out what might be going on for your particular child. This is unlikely to happen overnight, but may become clearer over time. You know them best.<\/li>\n<li><strong>Explore strategies<\/strong> you can use to manage different situations, or that help with particular behaviour. Finding the right approach can take a while, and may not work reliably. Just keep going.<\/li>\n<li><strong>Meet other parents<\/strong> who are coping with similar issues even if they are not \u2018rare parents\u2019. Libraries, council websites and GP surgeries often have details of local support groups for parents of children with SEN, autism or ADHD etc.<\/li>\n<li><strong>Hold in mind that not all difficult or unusual behaviour will be to do with your child&#8217;s rare condition.<\/strong> Consider wider possibilities too such as how things are at school (if they go), any changes that have happened recently, or how things are at home.<\/li>\n<li><strong>A child Psychologist<\/strong> referral can be very helpful, but waiting lists can be long. Ask your rare-condition specialist, SENCO, GP, CAMHS or social worker who and where it is best to approach.<\/li>\n<\/ul>\n<p><a href=\"https:\/\/cerebra.org.uk\/get-advice-support\/parent-guides\/\" target=\"_blank\" rel=\"noopener\">Cerebra<\/a> produces guides for parents of children with brain conditions, but their strategies and techniques for behaviour are also very helpful across other rare conditions.<\/p>\n<p><a href=\"https:\/\/www.familylives.org.uk\/\" target=\"_blank\" rel=\"noopener\">Family Lives<\/a> provide helpful guides on understanding your child by age, or difficulty as well as support for parents and grandparents. They also have a helpline and online chat space.<\/p>\n<p><a href=\"https:\/\/www.scope.org.uk\/advice-and-support\/managing-challenging-behaviour\/\" target=\"_blank\" rel=\"noopener\">Scope<\/a> provides a helpful resource to working with schools to help manage challenging behaviour, and understanding any triggers behind it. They also run support groups for parents of children with disabilities.<\/p>\n<p><a href=\"https:\/\/rarechromo.org\/media\/familyguides\/English\/Challenging%20Behaviour%20FTNW.pdf\" target=\"_blank\" rel=\"noopener\">Unique<\/a> produce a comprehensive guide to managing a wide range of difficult and unusual behaviours, and techniques or services to help.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Moving on to adult health care<\/h2>\n<p>At some point, your child or young person may move to adult health and social care. We talk more about navigating and managing this transition <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/navigating-healthcare\/managing-transition\/\">here<\/a>.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin=&#8221;||||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;5%|5%|5%|5%|true|true&#8221; custom_padding_tablet=&#8221;8%||||false|true&#8221; custom_padding_phone=&#8221;20%|5%|9%|5%|false|true&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; custom_css_before=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22%93}&#8221; custom_css_before_tablet=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; custom_css_before_phone=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||border-radius: 0 0 0 30px;&#8221; custom_css_before_last_edited=&#8221;on|phone&#8221;]<\/p>\n<h2>Useful links &amp; suggested reading<\/h2>\n<p><a href=\"https:\/\/www.affinityhub.uk\/1\/Welcome.html\" target=\"_blank\" rel=\"noopener\">Affinity Hub<\/a> signposts to emotional support for parents and carers of children with special needs.<\/p>\n<p><a href=\"https:\/\/cerebra.org.uk\/download\/mental-health-in-children-with-rare-genetic-conditions\/\" target=\"_blank\" rel=\"noopener\">Cerebra<\/a>\u00a0 provide lots of <a href=\"https:\/\/cerebra.org.uk\/get-advice-support\/parent-guides\/\" target=\"_blank\" rel=\"noopener\">practical guides<\/a> on accessing support and navigating services.<\/p>\n<p><a href=\"https:\/\/contact.org.uk\/\" target=\"_blank\" rel=\"noopener\">Contact<\/a> provides information and advice for families of disabled children.<\/p>\n<p><a href=\"https:\/\/www.familylives.org.uk\/\" target=\"_blank\" rel=\"noopener\">Family Lives<\/a> have lots of general parenting advice, videos and resources as well as a helpline for parenting support and advice.<\/p>\n<p><a href=\"https:\/\/www.fflag.org.uk\/\" target=\"_blank\" rel=\"noopener\">FFLAG<\/a> supports parents and families with LGBTQI+ members.<\/p>\n<p><a href=\"https:\/\/geneticalliance.org.uk\/support-and-information\/rare-resources\/\" target=\"_blank\" rel=\"noopener\">Genetic Alliance UK<\/a> has information for parents of children with rare conditions including navigating the NHS and accessing support.<\/p>\n<p><a href=\"https:\/\/www.gingerbread.org.uk\/our-work\/support-for-single-parents\/\" target=\"_blank\" rel=\"noopener\">Gingerbread<\/a> provide support for single parents generally.<\/p>\n<p><a href=\"https:\/\/www.relate.org.uk\/get-help\" target=\"_blank\" rel=\"noopener\">Relate<\/a> provide lots of guides to parenting including resolving conflict, co-parenting etc.<\/p>\n<p><a href=\"https:\/\/www.samebutdifferentcic.org.uk\/rareresources\" target=\"_blank\" rel=\"noopener\">Same but different<\/a> have a range for resources for parents of children affected by rare conditions.<\/p>\n<p>The \u2018Unique Feet\u2019 Community (hosted by the <a href=\"https:\/\/www.camraredisease.org\/unique-feet-advice-and-resources\/\" target=\"_blank\" rel=\"noopener\">Cambridge Rare Disease Network<\/a>) provide a range of resources for raising a child with a rare condition including finances, education, inclusive activities and tips from other parents etc.<\/p>\n<p><a href=\"https:\/\/rarechromo.org\/families\/\" target=\"_blank\" rel=\"noopener\">Unique<\/a> provide a range of information and resources for parents of children with rare chromosome disorder, copy number variant or single gene disorder, including video stories from other families.<\/p>\n<h5><strong>Useful books:<\/strong><\/h5>\n<p><em><strong>Helping your child with a physical health condition: A self help guide for parents<\/strong><\/em> by Mandy Byron and Penny Titman.<\/p>\n<p><em><strong>Married with special needs children: A couple\u2019s guide to keeping connected<\/strong><\/em> by Laura Marshak and Fran Pollock.<\/p>\n<p><em><strong>Day-by-day: Emotional wellbeing for parents of disabled children<\/strong><\/em> by Joanna Griffin.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][pac_divi_table_of_contents title=&#8221;Contents&#8221; collapse_when_sticky=&#8221;on&#8221; marker_position=&#8221;outside&#8221; level_markers_2=&#8221;icons&#8221; icon_marker_2=&#8221;&#x5e;||divi||400&#8243; indent_amount_2=&#8221;0px&#8221; allow_collapse_minimize_tablet=&#8221;off&#8221; allow_collapse_minimize_phone=&#8221;on&#8221; allow_collapse_minimize_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; sticky_position_phone=&#8221;none&#8221; sticky_position_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22title_container_bg_color%22%93,%22gcid-cf9415ef-e483-4e35-a620-b796a7d52716%22:%91%22body_area_text_link_color__hover%22%93}&#8221;][\/pac_divi_table_of_contents][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|700|||||||&#8221; header_2_line_height=&#8221;2em&#8221; header_3_font_size=&#8221;23px&#8221; header_5_font=&#8221;|700|||||||&#8221; header_5_text_color=&#8221;#82c398&#8243; header_5_font_size=&#8221;20px&#8221; header_5_line_height=&#8221;2em&#8221; width=&#8221;250px&#8221; custom_margin=&#8221;||26px||false|false&#8221; custom_padding=&#8221;|||15px|false|false&#8221; sticky_limit_bottom=&#8221;body&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; header_2_line_height_tablet=&#8221;2em&#8221; header_2_line_height_phone=&#8221;1.4em&#8221; header_2_line_height_last_edited=&#8221;on|phone&#8221; header_5_font_size_tablet=&#8221;20px&#8221; header_5_font_size_phone=&#8221;16px&#8221; header_5_font_size_last_edited=&#8221;on|phone&#8221; header_5_line_height_tablet=&#8221;2em&#8221; header_5_line_height_phone=&#8221;1.5em&#8221; header_5_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Related pages<\/h3>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Couples, sex &#038; intimacy&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2NzIifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Being a team, managing difficult feelings, dating with a rare condition<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Parenting&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MDAifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Ways to recharge, supporting siblings, coping with difficult behaviours<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Extended family &#038; friends&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MTEifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Opening up conversations, asking for support, \u2018who is good for what?\u2019<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Talking about your condition&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MTQifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; 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Parenting a child with a rare condition can add new considerations that you might not have had to think about before. Rare conditions vary in their intensity and impact, and even the same condition [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":2669,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"footnotes":""},"folder":[35],"class_list":["post-2700","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/pages\/2700","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/comments?post=2700"}],"version-history":[{"count":17,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/pages\/2700\/revisions"}],"predecessor-version":[{"id":6089,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/pages\/2700\/revisions\/6089"}],"up":[{"embeddable":true,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/pages\/2669"}],"wp:attachment":[{"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/media?parent=2700"}],"wp:term":[{"taxonomy":"folder","embeddable":true,"href":"https:\/\/www.rareminds.org\/de\/wp-json\/wp\/v2\/folder?post=2700"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}