{"id":2478,"date":"2024-04-22T14:31:18","date_gmt":"2024-04-22T13:31:18","guid":{"rendered":"https:\/\/www.rareminds.org\/?page_id=2478"},"modified":"2026-08-10T16:34:51","modified_gmt":"2026-08-10T15:34:51","slug":"uncertainty","status":"publish","type":"page","link":"https:\/\/www.rareminds.org\/cy\/wellbeing-hub\/uncertainty-change-loss\/uncertainty\/","title":{"rendered":"Ansicrwydd"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 70%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 73%&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px|5vw|0px||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color_gradient_stops%22%93}&#8221;][et_pb_row make_equal=&#8221;on&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;|2vw|50px|8vw|false|false&#8221; border_radii=&#8221;off|||200px|&#8221; border_width_right=&#8221;14px&#8221; border_color_right=&#8221;gcid-cf9415ef-e483-4e35-a620-b796a7d52716&#8243; box_shadow_style=&#8221;preset4&#8243; box_shadow_horizontal=&#8221;13px&#8221; box_shadow_vertical=&#8221;0px&#8221; box_shadow_color=&#8221;gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2&#8243; 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custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||||false|false&#8221; text_font_size_tablet=&#8221;21px&#8221; text_font_size_phone=&#8221;16px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; header_font_size_tablet=&#8221;43px&#8221; header_font_size_phone=&#8221;28px&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; header_4_font_size_tablet=&#8221;17px&#8221; header_4_font_size_phone=&#8221;15px&#8221; header_4_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<span><nav aria-label=\"breadcrumbs\" class=\"rank-math-breadcrumb\"><p><span class=\"last\">Home<\/span><\/p><\/nav><\/span><\/p>\n<h1><\/h1>\n<h1><\/h1>\n<h1><\/h1>\n<h1>Uncertainty<\/h1>\n<p><span style=\"font-weight: 400;\">The challenge of uncertainty, managing anticipatory grief and anxiety<\/span>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; title_text=&#8221;Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss&#8221; align_tablet=&#8221;left&#8221; align_phone=&#8221;left&#8221; align_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; width=&#8221;350px&#8221; width_tablet=&#8221;200px&#8221; width_phone=&#8221;150px&#8221; width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;right&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;|10px||10px|false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|tablet&#8221; border_radii=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; padding_right_1=&#8221;2vw&#8221; padding_left_2=&#8221;3vw&#8221; padding_top_bottom_link_1=&#8221;false&#8221; padding_top_bottom_link_2=&#8221;false&#8221; padding_left_right_link_1=&#8221;false&#8221; padding_left_right_link_2=&#8221;false&#8221; padding_1_tablet=&#8221;|0px|||false|false&#8221; padding_2_tablet=&#8221;|||0px|false|false&#8221; padding_1_phone=&#8221;|0px|||false|false&#8221; padding_2_phone=&#8221;|||0px|false|false&#8221; padding_1_last_edited=&#8221;on|desktop&#8221; padding_2_last_edited=&#8221;on|desktop&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 75%|gcid-cda4ad62-552d-4861-ac19-bc0028373e46 75%&#8221; inner_width_tablet=&#8221;85%&#8221; inner_width_phone=&#8221;85%&#8221; inner_width_last_edited=&#8221;on|tablet&#8221; inner_max_width=&#8221;80%&#8221; inner_max_width_tablet=&#8221;&#8221; inner_max_width_phone=&#8221;&#8221; inner_max_width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;24px|0px||0px|false|false&#8221; background_last_edited=&#8221;on|desktop&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22,%22background_color_gradient_stops%22%93}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>The challenge of uncertainty<\/h2>\n<p>One of the most challenging aspects of living with a rare condition is the amount of uncertainty that can be involved.<\/p>\n<p>Rare conditions can often behave unpredictably. It can be hard to predict the nature and timing of their impact. Two people with the same condition may have quite different symptoms, or have different severity of impact.<\/p>\n<p>[\/et_pb_text][et_pb_video src=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2025\/01\/Uncertainty-english.mp4&#8243; src_webm=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2025\/01\/Uncertainty-english.webm&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; border_width_all=&#8221;1px&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_video][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Types of uncertainty<\/h2>\n<p>Living with a lot of uncertainty is emotional \u2018hard work\u2019. Developing strategies to help cope with related aspects, like anxiety and stress, can be helpful.<\/p>\n<p>The uncertainties associated with rare conditions fall into two types:<\/p>\n<p><strong>Short term uncertainties:<\/strong><\/p>\n<ul>\n<li>will today be a \u2018good or a bad day\u2019 with respect to your symptoms<\/li>\n<li>will the healthcare provider you talk to today have heard of (or understand) your rare condition<\/li>\n<li>will your travel arrangements to an appointment go as planned<\/li>\n<li>will you get to see your preferred doctor today (or the one you don\u2019t much like)<\/li>\n<\/ul>\n<p><strong>Longer-term uncertainties:<\/strong><\/p>\n<p><strong><\/strong><\/p>\n<ul>\n<li>how to plan your work-life or career with regard to your condition<\/li>\n<li>what treatment might be available (or become available) for you<\/li>\n<li>what impact on your condition might have on your relationship with a partner, or other family members<\/li>\n<li>worries about death and dying<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; icon_placement=&#8221;left&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; body_font_size=&#8221;16px&#8221; body_link_font=&#8221;|600|||on||||&#8221; body_link_text_color=&#8221;#000000&#8243; custom_margin=&#8221;||40px||false|false&#8221; custom_margin_tablet=&#8221;||30px||false|false&#8221; custom_margin_phone=&#8221;||30px||false|false&#8221; custom_margin_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; link_option_url=&#8221;#&#8221; body_font_size_tablet=&#8221;14px&#8221; body_font_size_phone=&#8221;14px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>When coping with uncertainty, it can help to think of yourself as \u2018building psychological muscles\u2019. The more you use those muscles to carry the weight of uncertainty, the stronger you get at doing it. With time and practice, it can start to feel a bit easier.<\/p>\n<p>[\/et_pb_blurb][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Coping with uncertainty<\/h2>\n<p>Managing and planning your life around a lot of \u2018unknowns\u2019 can be very challenging. We all have different personal thresholds for coping with the emotional impact of uncertainty. Some of us can naturally cope with it more easily than others.<\/p>\n<p><strong>How you feel about uncertainty will depend on a number of factors including:<\/strong><\/p>\n<ul>\n<li>your personality, age and life-stage<\/li>\n<li>how much uncertainty you are already coping with<\/li>\n<li>how uncertainty was managed in your family when you were younger<\/li>\n<li>neurodiversity<\/li>\n<li>religious, cultural and personal beliefs<\/li>\n<li>the amount of practical and emotional support available to you<\/li>\n<\/ul>\n<p><strong>Uncertainty &amp; anxiety\u00a0<\/strong><\/p>\n<p>Too much uncertainty can lead to feeling anxious and stressed. It can also involve difficult feelings like disappointment and frustration when plans have to change, or be postponed.<\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; module_class=&#8221;wh-tip wh-text&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0517feb2-9fa3-4547-87b5-c8030e5975d4&#8243; custom_margin_phone=&#8221;||30px||false|false&#8221; link_option_url=&#8221;#&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>If you catch yourself being \u2018down\u2019 on yourself, challenge that thought. We can often feel frustrated that we are not coping or managing better, particularly \u2018if only\u2019 something else was different &#8211; for example, if we had more help, were less tired or had an appointment sooner etc.<\/p>\n<p>[\/et_pb_blurb][et_pb_text module_id=&#8221;highlight&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;0c38199e-3a1d-4d5d-826d-ef93f305cb70&#8243; header_2_font=&#8221;|700|||||||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22%93,%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color%22%93,%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22%93}&#8221;]<\/p>\n<h2>What helps?<\/h2>\n<h3>Accept uncertainty, rather than \u2018fighting\u2019 it<\/h3>\n<ul>\n<li>Accepting uncertainty allows you to divert your emotional energy from struggling against it, to managing it.<\/li>\n<\/ul>\n<h3>Remind yourself<\/h3>\n<ul>\n<li>Uncertainty can be\u00a0 a difficult part of life (even without a rare condition).<\/li>\n<li>You are still \u2018building muscles\u2019 for coping with uncertainty.<\/li>\n<\/ul>\n<h3>Maintain your underlying health<\/h3>\n<ul>\n<li>Sleep, stay hydrated and eat as healthy as you can.<\/li>\n<\/ul>\n<h3>Make deliberate choices<\/h3>\n<ul>\n<li>Sometimes, it might take all your energy just to get through the day. It&#8217;s ok to let some things go.<\/li>\n<\/ul>\n<h3>Focus on what you can control, not what you can\u2019t<\/h3>\n<ul>\n<li>Remind yourself some things you can influence and be in control of, and some you can\u2019t.<\/li>\n<\/ul>\n<ul><\/ul>\n<h3>Focus on preventing symptoms<\/h3>\n<ul>\n<li>Manage your diet, do exercise or physio or take your medication as prescribed.<\/li>\n<\/ul>\n<ul><\/ul>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;49px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; header_2_line_height=&#8221;1.2em&#8221; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Hope for the best, plan for the worst<\/h2>\n<p>If you are living with a lot of uncertainty, it can feel hard to make plans. Allowing yourself to look forward to something whilst aware of the possible disappointment of it having to change can be a tricky balancing act.<\/p>\n<p>However, being able to make plans that are both short and longer term is often important for our overall well being.<\/p>\n<p>How to do this in a way that supports our capacity to cope with change and stay flexible is key. Below are some strategies that can help.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<blockquote>\n<p>It felt so, so hard to plan and think ahead. Not just one day to the next, but next year, next month too. Things feel more stable now, but I guess I\u2019m still pretty cautious.<\/p>\n<\/blockquote>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Have a \u2018Plan B\u2019 for if things need to change<\/h2>\n<p>Having a Plan B allows you to think through in advance both the practical and emotional implications should plans need to change.<\/p>\n<p><strong>Some examples might include:<\/strong><\/p>\n<p><strong><\/strong><\/p>\n<ul>\n<li>If you are not able to attend a social event, such as meeting up with a friend, reschedule it as soon as possible so you have a new date and time to look forward to.<\/li>\n<li>Find different ways to participate in an event you are finding difficult to attend. This might mean joining via video-link, only going for a short period only and\/or arranging to have a \u2018quiet\/rest space\u2019 there if you need it.<\/li>\n<li>Ask a friend or relative to attend an event on your behalf. If possible, make a video for you that you can watch later with them and other participants.<\/li>\n<li>If a bigger event is not possible, hold a \u2018mini-experience\u2019 such as a special evening with a friend, rather than a party.<\/li>\n<li>Where possible, add cancellation insurance for holidays and travel arrangements etc.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; icon_placement=&#8221;left&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; body_font_size=&#8221;16px&#8221; body_link_font=&#8221;|600|||on||||&#8221; body_link_text_color=&#8221;#000000&#8243; custom_margin=&#8221;||40px||false|false&#8221; custom_margin_tablet=&#8221;||30px||false|false&#8221; custom_margin_phone=&#8221;||30px||false|false&#8221; custom_margin_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; link_option_url=&#8221;#&#8221; body_font_size_tablet=&#8221;14px&#8221; body_font_size_phone=&#8221;14px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>Having a \u2018Plan B\u2019 is also important after receiving tests, treatment, or being a hospital in-patient. Always ask who to contact, and what to look out for if recovery does not seem to be going as planned.<\/p>\n<p>[\/et_pb_blurb][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Have a \u2018Plan C\u2019 \u2026 or \u2018Crisis Plan\u2019<\/h2>\n<p>A crisis takes time to both manage, and to recover from. You need to look after yourself. Put other demands and responsibilities \u2018on hold\u2019 as best you can whilst you recover.<\/p>\n<p><strong>A crisis includes things like:<\/strong><\/p>\n<ul>\n<li>a medical emergency or event<\/li>\n<li>something unexpected or unpleasant happening during a medical procedure<\/li>\n<li>the need to take time-off work suddenly<\/li>\n<li>unexpected difficult news<\/li>\n<\/ul>\n<p><strong>\u2018Small C\u2019<\/strong> crises are not life-threatening, but can still be very disruptive, and impactful.<\/p>\n<p><strong>\u2018Big C\u2019 crises<\/strong> are those that are potentially life-threatening, or emotionally overwhelming.<\/p>\n<p>All crises have the potential to be traumatic.<\/p>\n<p>By their nature, many crises are unpredictable. However, if you know that your condition has the potential for creating a crisis, a &#8216;crisis plan&#8217; can help.<\/p>\n<p><strong>A crisis plan should include:<\/strong><\/p>\n<ul>\n<li>what you need to do practically (step-by-step if needs be)<\/li>\n<li>who to call on for support if needed<\/li>\n<li>how to manage the rest of your day\/week to allow time to recover<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Coping with anxiety<\/h2>\n<p>Anxiety is often a &#8216;side-effect&#8217; of uncertainty.<\/p>\n<p>Learning to manage and cope with anxiety is therefore a very helpful skill to learn. What works for you, and what you find helpful, will be based on you as an individual.<\/p>\n<p><strong>You could try:<\/strong><\/p>\n<ul>\n<li aria-level=\"1\">using some of the coping strategies in <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/you-and-your-emotions\/\">You and your emotions<\/a><\/li>\n<li aria-level=\"1\">make clear Plan B&#8217;s or C&#8217;s as necessary for specific scenarios<\/li>\n<li aria-level=\"1\">accept that some things cannot be known or planned for (even though this is hard)<\/li>\n<\/ul>\n<p><strong>Remind yourself that you have the capacity to cope.<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Therapist Tip&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/noun-tips-2448957-FBB717.png&#8221; icon_placement=&#8221;left&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; body_font_size=&#8221;16px&#8221; body_link_font=&#8221;|600|||on||||&#8221; body_link_text_color=&#8221;#000000&#8243; custom_margin=&#8221;||40px||false|false&#8221; custom_margin_tablet=&#8221;||30px||false|false&#8221; custom_margin_phone=&#8221;||30px||false|false&#8221; custom_margin_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; link_option_url=&#8221;#&#8221; body_font_size_tablet=&#8221;14px&#8221; body_font_size_phone=&#8221;14px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22,%22border_color_all%22,%22border_color_all%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22icon_color%22%93}&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p>Coping with a lot of uncertainty and unpredictability can be very stressful. If you are struggling, ask for help from someone you know and trust, or a professional.<\/p>\n<p>[\/et_pb_blurb][et_pb_text module_id=&#8221;highlight&#8221; module_class=&#8221;wh-text wh-highlight&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; text_text_color=&#8221;#000000&#8243; header_2_font=&#8221;|700|||||||&#8221; header_3_font=&#8221;|700|||||||&#8221; header_3_text_color=&#8221;#000000&#8243; header_3_font_size=&#8221;16px&#8221; background_color=&#8221;gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00&#8243; custom_margin=&#8221;||41px||false|false&#8221; custom_padding=&#8221;5%|4%|5%|4%|true|true&#8221; header_3_font_size_tablet=&#8221;16px&#8221; header_3_font_size_phone=&#8221;16px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; custom_css_main_element=&#8221;columns: 200px 2;||column-gap: 4vw;||||&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22,%22header_5_text_color%22%93,%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color%22%93,%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22%93}&#8221;]<\/p>\n<h2><b>What helps?<\/b><\/h2>\n<h3><b>Identify your anxiety &amp; worry \u2018triggers\u2019<\/b><\/h3>\n<ul>\n<li>Certain situations or environments might trigger worry or anxiety, particularly if you associate them with a previous difficult experience.<\/li>\n<\/ul>\n<h3><strong>Worry book<\/strong><\/h3>\n<ul>\n<li>If you worry at night, write down your worries. Come back to them in daylight when you can think them through more easily.<\/li>\n<\/ul>\n<h3><strong>Take practical actions<\/strong><\/h3>\n<ul>\n<li>Facing the worry can help you decide the next steps.<span style=\"font-weight: 400;\"><\/span><\/li>\n<\/ul>\n<h3><strong>Identify who can help<\/strong><\/h3>\n<ul>\n<li>For example, speak to a financial\/benefits advisor about money worries or your doctor about a particular health worry.<\/li>\n<\/ul>\n<h3><strong>Be assertive<\/strong><\/h3>\n<ul>\n<li>Ask for what you need. Learn to say no<\/li>\n<\/ul>\n<h3>Learn relaxation &amp; stress management techniques<\/h3>\n<ul>\n<li>This can also help prevent (or ease) some symptom \u2018flares\u2019.<\/li>\n<\/ul>\n<ul><\/ul>\n<h3>Focus on dealing with the \u2018next thing\u2019, not \u2018everything\u2019<\/h3>\n<ul>\n<li>You do not have to (and cannot) know everything at the outset. Some things will only become clearer in time.<\/li>\n<\/ul>\n<h3>Break big tasks up into smaller ones<\/h3>\n<ul>\n<li>It\u2019s easy to feel overwhelmed. Remind yourself that mountains are not climbed in a day, but in stages.<\/li>\n<\/ul>\n<h3>Prioritise tasks<\/h3>\n<ul>\n<li>Make a to-do list and then order your tasks based on urgency or can wait.<\/li>\n<li>Review list regularly to help manage feeling overwhelmed.<\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\"><\/span><\/p>\n<p><span style=\"font-weight: 400;\"><\/span><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Stay in the present<\/h2>\n<p>We can often spend a lot of time worrying about future events that have not yet happened.<\/p>\n<p>Although this is &#8216;human nature&#8217;, often the future is not exactly as we imagined when we get there. Research shows that we often cope better with difficult future events than we initially imagine we will.<\/p>\n<blockquote>\n<p>\u201cWorrying is carrying tomorrow&#8217;s load with today&#8217;s strength &#8211; carrying two days at once. It is moving into tomorrow ahead of time. Worrying doesn&#8217;t empty tomorrow of its sorrow, it empties today of its strength.\u201d Corrie Ten Boom<\/p>\n<\/blockquote>\n<p>You can read more about managing worry and anxiety on our <a href=\"https:\/\/www.rareminds.org\/wellbeing-hub\/you-and-your-emotions\/\">You and your emotions<\/a> pages.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;6d2bc1d8-a2e9-472c-821a-6aa6bc293122&#8243; custom_margin_tablet=&#8221;|2vw|30px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Mindfulness<\/h2>\n<p><span style=\"font-weight: 400;\">Mindfulness is a very well-evidenced technique that can help cope with uncertainty, unpredictability and anxiety.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It&#8217;s increasingly being taught as a skill on the NHS to help manage health conditions, pain and stress.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">One mindfulness\u2019 central themes is to bring your attention back to the &#8216;present moment&#8217; rather than focus too far ahead (on the future) or on the past (which has already happened). This frees up\u00a0 your psychological resources to deal just with the demands of the present.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">You can find more information about Mindfulness from the NHS <a href=\"https:\/\/www.nhs.uk\/every-mind-matters\/mental-wellbeing-tips\/what-is-mindfulness\/\" target=\"_blank\" rel=\"noopener\">here<\/a>.\u00a0<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;16px&#8221; link_font=&#8221;|600|||on||||&#8221; link_text_color=&#8221;#000000&#8243; header_2_font=&#8221;||||||||&#8221; header_5_font=&#8221;|700|||||||&#8221; custom_margin=&#8221;||||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;5%|5%|5%|5%|true|true&#8221; custom_padding_tablet=&#8221;8%||||false|true&#8221; custom_padding_phone=&#8221;20%|5%|9%|5%|false|true&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;14px&#8221; text_font_size_phone=&#8221;14px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221; custom_css_before=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; global_colors_info=&#8221;{%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22border_color_all%22,%22border_color_all%22%93}&#8221; custom_css_before_last_edited=&#8221;on|phone&#8221; custom_css_before_tablet=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||background: #D9EBDF;||border-radius: 0 0 0 30px;&#8221; custom_css_before_phone=&#8221;content: url(https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/04\/link-icon-txp.png);||position: absolute;||width: 90;||height: 90;||top: -10px;||right: -5px;||border-radius: 0 0 0 30px;&#8221;]<\/p>\n<h2>Resources &amp; useful links<\/h2>\n<p><span style=\"font-weight: 400;\">Anxiety Canada &#8211; <a href=\"https:\/\/www.anxietycanada.com\/sites\/default\/files\/ToleratingUncertainty.pdf\" target=\"_blank\" rel=\"noopener\">Tolerating uncertainty<\/a><\/span><a href=\"https:\/\/www.anxietycanada.com\/sites\/default\/files\/ToleratingUncertainty.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><\/span><\/a><\/p>\n<p><span style=\"font-weight: 400;\">Beyond Autism &#8211; <a href=\"https:\/\/www.beyondautism.org.uk\/about-autism\/understanding-behaviour\/routine-and-planning-for-change\/\u00a0\" target=\"_blank\" rel=\"noopener\">Routine and planning for change<\/a><\/span><\/p>\n<p><span style=\"font-weight: 400;\">NHS &#8211; <a href=\"https:\/\/www.nhs.uk\/every-mind-matters\/mental-wellbeing-tips\/how-to-deal-with-change\/\" target=\"_blank\" rel=\"noopener\">How to deal with change.\u00a0<\/a><\/span><a href=\"https:\/\/www.nhs.uk\/every-mind-matters\/mental-wellbeing-tips\/how-to-deal-with-change\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><\/span><\/a><\/p>\n<p><span style=\"font-weight: 400;\">Psychology Today &#8211; <a href=\"https:\/\/www.psychologytoday.com\/us\/blog\/chronically-me\/201904\/chronic-illness-and-uncertainty\" target=\"_blank\" rel=\"noopener\">Chronic illness and uncertainty<\/a><\/span><a href=\"https:\/\/www.psychologytoday.com\/us\/blog\/chronically-me\/201904\/chronic-illness-and-uncertainty\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><\/span><\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][pac_divi_table_of_contents title=&#8221;Contents&#8221; collapse_when_sticky=&#8221;on&#8221; marker_position=&#8221;outside&#8221; level_markers_2=&#8221;icons&#8221; icon_marker_2=&#8221;&#x5e;||divi||400&#8243; indent_amount_2=&#8221;0px&#8221; allow_collapse_minimize_tablet=&#8221;off&#8221; allow_collapse_minimize_phone=&#8221;on&#8221; allow_collapse_minimize_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; sticky_position_phone=&#8221;none&#8221; sticky_position_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22title_container_bg_color%22%93,%22gcid-cf9415ef-e483-4e35-a620-b796a7d52716%22:%91%22body_area_text_link_color__hover%22%93}&#8221;][\/pac_divi_table_of_contents][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|700|||||||&#8221; header_2_line_height=&#8221;2em&#8221; header_3_font_size=&#8221;23px&#8221; header_5_font=&#8221;|700|||||||&#8221; header_5_text_color=&#8221;#82c398&#8243; header_5_font_size=&#8221;20px&#8221; header_5_line_height=&#8221;2em&#8221; width=&#8221;250px&#8221; custom_margin=&#8221;||26px||false|false&#8221; custom_padding=&#8221;|||15px|false|false&#8221; sticky_limit_bottom=&#8221;body&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; header_2_line_height_tablet=&#8221;2em&#8221; header_2_line_height_phone=&#8221;1.4em&#8221; header_2_line_height_last_edited=&#8221;on|phone&#8221; header_5_font_size_tablet=&#8221;20px&#8221; header_5_font_size_phone=&#8221;16px&#8221; header_5_font_size_last_edited=&#8221;on|phone&#8221; header_5_line_height_tablet=&#8221;2em&#8221; header_5_line_height_phone=&#8221;1.5em&#8221; header_5_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Related pages<\/h3>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Uncertainty&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI0NzgifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>The challenge of uncertainty, managing anticipatory grief and anxiety<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Change &#038; loss&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2MTkifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Types of change and loss, grieving the changes, recovering from trauma<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Grief&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2MzEifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Acknowledging loss, growing around grief, reaching out to support<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Talking about dying&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2NDEifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Conversations about dying, practical matters and making memories<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Bereavement&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||on||||&#8221; header_font_size=&#8221;1em&#8221; header_line_height=&#8221;1.2em&#8221; body_text_color=&#8221;#424242&#8243; body_font_size=&#8221;12px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding=&#8221;10px|15px|10px|15px|false|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2NDkifX0=@&#8221; sticky_limit_bottom=&#8221;body&#8221; custom_css_blurb_title=&#8221;padding-bottom: 5px;&#8221; border_radii=&#8221;on|18px|18px|18px|18px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#b4dbc1&#8243; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;]<\/p>\n<p>Grief after bereavement, secondary loss, ways to cope, when to seek help<\/p>\n<p>[\/et_pb_blurb][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-text wh-quote&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|700|||||||&#8221; header_2_line_height=&#8221;2em&#8221; header_3_font_size=&#8221;23px&#8221; header_5_font=&#8221;|700|||||||&#8221; header_5_text_color=&#8221;#82c398&#8243; header_5_font_size=&#8221;20px&#8221; header_5_line_height=&#8221;2em&#8221; width=&#8221;250px&#8221; custom_margin=&#8221;32px||26px||false|false&#8221; custom_padding=&#8221;|||15px|false|false&#8221; sticky_limit_bottom=&#8221;body&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; header_2_line_height_tablet=&#8221;2em&#8221; header_2_line_height_phone=&#8221;1.4em&#8221; header_2_line_height_last_edited=&#8221;on|phone&#8221; header_5_font_size_tablet=&#8221;20px&#8221; header_5_font_size_phone=&#8221;16px&#8221; header_5_font_size_last_edited=&#8221;on|phone&#8221; header_5_line_height_tablet=&#8221;2em&#8221; header_5_line_height_phone=&#8221;1.5em&#8221; header_5_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Section guide<\/h3>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Diagnosis&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x39;||divi||400&#8243; icon_color=&#8221;#000000&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|off&#8221; module_class=&#8221;wh-section-title&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; header_font_size=&#8221;1rem&#8221; header_letter_spacing=&#8221;1px&#8221; header_line_height=&#8221;1.3em&#8221; body_font_size=&#8221;16px&#8221; custom_padding=&#8221;5px|10px|||false|false&#8221; animation=&#8221;off&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjIyNDUifX0=@&#8221; header_font_size_tablet=&#8221;1.1em&#8221; header_font_size_phone=&#8221;1.1em&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; custom_css_main_element=&#8221;width: 250px&#8221; custom_css_blurb_title=&#8221;padding-top: 6px||&#8221; border_radii=&#8221;on|15px|15px|15px|15px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color__hover%22%93}&#8221; background__hover_enabled=&#8221;on|hover&#8221; background_color__hover=&#8221;#cde7d6&#8243; background_enable_color__hover=&#8221;on&#8221; custom_padding__hover_enabled=&#8221;on|hover&#8221; custom_padding__hover=&#8221;|||10px|false|false&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Uncertanty change and loss&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x39;||divi||400&#8243; icon_color=&#8221;#000000&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; header_font_size=&#8221;1rem&#8221; header_letter_spacing=&#8221;1px&#8221; header_line_height=&#8221;1.3em&#8221; body_font_size=&#8221;16px&#8221; custom_padding=&#8221;5px|10px|||false|false&#8221; animation=&#8221;off&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI0NzUifX0=@&#8221; header_font_size_tablet=&#8221;1.1em&#8221; header_font_size_phone=&#8221;1.1em&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; custom_css_main_element=&#8221;width: 250px&#8221; custom_css_blurb_title=&#8221;padding-top: 5px||||&#8221; border_radii=&#8221;on|15px|15px|15px|15px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color__hover%22,%22background_color__hover%22%93}&#8221; background_color__hover=&#8221;#cde7d6&#8243; custom_padding__hover=&#8221;|||10px|false|false&#8221; custom_padding__hover_enabled=&#8221;on|hover&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Relationships&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x39;||divi||400&#8243; icon_color=&#8221;#000000&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;||||||||&#8221; header_font_size=&#8221;1rem&#8221; header_letter_spacing=&#8221;1px&#8221; header_line_height=&#8221;1.3em&#8221; body_font_size=&#8221;16px&#8221; custom_padding=&#8221;5px|10px|||false|false&#8221; animation=&#8221;off&#8221; 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_builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;ec31b593-7ea3-4476-a3e9-378d966a363d&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI3MjYifX0=@&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22,%22background_color__hover%22%93}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Coping with pain&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x39;||divi||400&#8243; _builder_version=&#8221;4.27.5&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;ec31b593-7ea3-4476-a3e9-378d966a363d&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjUwOTQifX0=@&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-921d75e2-c63d-46b3-a7b4-c6fdbe950b00%22:%91%22background_color__hover%22%93}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Fatigue, tiredness &#038; 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Rare conditions can often behave unpredictably. It can be hard to predict the nature and timing of their impact. 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