{"id":2475,"date":"2024-04-24T10:14:36","date_gmt":"2024-04-24T09:14:36","guid":{"rendered":"https:\/\/www.rareminds.org\/?page_id=2475"},"modified":"2026-07-29T17:12:01","modified_gmt":"2026-07-29T16:12:01","slug":"uncertainty-change-loss","status":"publish","type":"page","link":"https:\/\/www.rareminds.org\/cy\/wellbeing-hub\/uncertainty-change-loss\/","title":{"rendered":"Ansicrwydd Newid a Cholled"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px|5vw|0px||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_color_tablet=&#8221;RGBA(255,255,255,0)&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_tablet=&#8221;on&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; use_background_color_gradient_phone=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color_gradient_stops%22%93}&#8221;][et_pb_row make_equal=&#8221;on&#8221; module_class=&#8221;reverse-columns-mobile&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-cda4ad62-552d-4861-ac19-bc0028373e46&#8243; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;|2vw|50px|8vw|false|false&#8221; border_radii=&#8221;off|||200px|&#8221; border_width_right=&#8221;14px&#8221; border_color_right=&#8221;gcid-cf9415ef-e483-4e35-a620-b796a7d52716&#8243; box_shadow_style=&#8221;preset4&#8243; box_shadow_horizontal=&#8221;13px&#8221; box_shadow_vertical=&#8221;0px&#8221; box_shadow_color=&#8221;gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2&#8243; global_colors_info=&#8221;{%22gcid-cf9415ef-e483-4e35-a620-b796a7d52716%22:%91%22border_color_right%22%93,%22gcid-9cdde9ee-f44a-4873-b70d-fc2d55a114a2%22:%91%22box_shadow_color%22%93,%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color%22%93}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.2&#8243; _module_preset=&#8221;default&#8221; custom_css_main_element=&#8221;display: flex;||justify-content: space-between;||align-items: center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_class=&#8221;wh-text&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#000000&#8243; text_font_size=&#8221;21px&#8221; text_line_height=&#8221;1.5em&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;2em&#8221; header_line_height=&#8221;1.2em&#8221; header_4_font_size=&#8221;22px&#8221; header_4_line_height=&#8221;1.4em&#8221; width=&#8221;80%&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_margin_tablet=&#8221;||||false|false&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;|0vw|||false|false&#8221; custom_padding_tablet=&#8221;|3vw|||false|false&#8221; custom_padding_phone=&#8221;|3vw|||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;16px&#8221; text_font_size_phone=&#8221;15px&#8221; text_font_size_last_edited=&#8221;on|tablet&#8221; header_font_size_tablet=&#8221;1.6em&#8221; header_font_size_phone=&#8221;1.4em&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; header_4_font_size_tablet=&#8221;17px&#8221; header_4_font_size_phone=&#8221;15px&#8221; header_4_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span><nav aria-label=\"breadcrumbs\" class=\"rank-math-breadcrumb\"><p><span class=\"last\">Home<\/span><\/p><\/nav><\/span><\/p>\n<h1><\/h1>\n<h1><\/h1>\n<h1><\/h1>\n<h1>Uncertainty, change &amp; loss<\/h1>\n<p><span style=\"font-weight: 400;\">There are lots of different aspects to living with the impact of a rare condition that may involve managing uncertainty, change or loss.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Not all of the pages in this section may be relevant to your own unique experience, or what you are coping with as an individual right now.\u00a0<\/span><span style=\"font-weight: 400;\">Some sections may not speak to your own (or current) experience, such as those on dying or bereavement. You can always visit these at another point should you need to.<\/span><\/p>\n<h4><\/h4>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; padding_left_2=&#8221;4vw&#8221; padding_top_bottom_link_2=&#8221;false&#8221; padding_left_right_link_2=&#8221;false&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;90deg&#8221; background_color_gradient_stops=&#8221;#ffffff 75%|gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec 75%&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; inner_max_width=&#8221;1300px&#8221; background_last_edited=&#8221;on|tablet&#8221; use_background_color_gradient_tablet=&#8221;off&#8221; global_colors_info=&#8221;{%22gcid-cda4ad62-552d-4861-ac19-bc0028373e46%22:%91%22background_color_gradient_stops%22%93,%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color_gradient_stops%22%93}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; module_class=&#8221;dtb-equal-height&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;1300px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Uncertainty&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; image_icon_width=&#8221;34%&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; body_text_align=&#8221;center&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;10%|5%|10%|5%|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI0NzgifX0=@&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_radii_image=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color%22,%22background_color%22%93,%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_text_color%22,%22header_text_color%22%93,%22gcid-ef29e373-602b-462d-8f41-195237fe824c%22:%91%22background_color__hover%22%93}&#8221; transform_styles__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover=&#8221;9px&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221; transform_scale__hover=&#8221;105%|105%&#8221; transform_scale__hover_enabled=&#8221;on|hover&#8221; transform_translate__hover_enabled=&#8221;on|desktop&#8221; transform_rotate__hover_enabled=&#8221;on|desktop&#8221; transform_skew__hover_enabled=&#8221;on|desktop&#8221; transform_origin__hover_enabled=&#8221;on|desktop&#8221; background_color__hover=&#8221;#ebf4f1&#8243;]<\/p>\n<p>The challenge of uncertainty, managing anticipatory grief and anxiety<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Change &#038; loss&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; image_icon_width=&#8221;34%&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; body_text_align=&#8221;center&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;10%|5%|10%|5%|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2MTkifX0=@&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_radii_image=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color%22,%22background_color%22,%22background_color%22%93,%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_text_color%22%93,%22gcid-ef29e373-602b-462d-8f41-195237fe824c%22:%91%22background_color__hover%22%93}&#8221; transform_styles__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover=&#8221;9px&#8221; box_shadow_spread__hover_enabled=&#8221;on|hover&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221; transform_scale__hover=&#8221;105%|105%&#8221; transform_scale__hover_enabled=&#8221;on|hover&#8221; transform_translate__hover_enabled=&#8221;on|desktop&#8221; transform_rotate__hover_enabled=&#8221;on|desktop&#8221; transform_skew__hover_enabled=&#8221;on|desktop&#8221; transform_origin__hover_enabled=&#8221;on|desktop&#8221; background_color__hover=&#8221;#ebf4f1&#8243;]<\/p>\n<p>Types of change and loss, grieving the changes, recovering from trauma<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; module_class=&#8221;dtb-equal-height&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Grief&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; image_icon_width=&#8221;34%&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; body_text_align=&#8221;center&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;10%|5%|10%|5%|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2MzEifX0=@&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_radii_image=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22%93,%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_text_color%22,%22header_text_color%22%93,%22gcid-ef29e373-602b-462d-8f41-195237fe824c%22:%91%22background_color__hover%22%93}&#8221; transform_styles__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover=&#8221;9px&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221; transform_scale__hover=&#8221;105%|105%&#8221; transform_scale__hover_enabled=&#8221;on|hover&#8221; transform_translate__hover_enabled=&#8221;on|desktop&#8221; transform_rotate__hover_enabled=&#8221;on|desktop&#8221; transform_skew__hover_enabled=&#8221;on|desktop&#8221; transform_origin__hover_enabled=&#8221;on|desktop&#8221; background_color__hover=&#8221;#ebf4f1&#8243;]<\/p>\n<p>Acknowledging loss, growing around grief, reaching out to support<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Talking about dying&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; image_icon_width=&#8221;34%&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; body_text_align=&#8221;center&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;10%|5%|10%|5%|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2NDEifX0=@&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_radii_image=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22%93,%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_text_color%22,%22header_text_color%22%93,%22gcid-ef29e373-602b-462d-8f41-195237fe824c%22:%91%22background_color__hover%22%93}&#8221; transform_styles__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover=&#8221;9px&#8221; box_shadow_spread__hover_enabled=&#8221;on|hover&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221; transform_scale__hover=&#8221;105%|105%&#8221; transform_scale__hover_enabled=&#8221;on|hover&#8221; transform_translate__hover_enabled=&#8221;on|desktop&#8221; transform_rotate__hover_enabled=&#8221;on|desktop&#8221; transform_skew__hover_enabled=&#8221;on|desktop&#8221; transform_origin__hover_enabled=&#8221;on|desktop&#8221; background_color__hover=&#8221;#ebf4f1&#8243;]<\/p>\n<p>Conversations about dying, practical matters and making memories<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; module_class=&#8221;dtb-equal-height&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Bereavement&#8221; image=&#8221;https:\/\/www.rareminds.org\/wp-content\/uploads\/2024\/03\/Rareminds-Wellbeing-Hub-Website-Mockup-Images-Uncertainty-Change-and-Loss.jpg&#8221; image_icon_width=&#8221;34%&#8221; _builder_version=&#8221;4.24.3&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;gcid-56bff3fb-e765-4a78-b152-15a836421100&#8243; body_text_align=&#8221;center&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;10%|5%|10%|5%|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2NDkifX0=@&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_radii_image=&#8221;on|50%|50%|50%|50%&#8221; global_colors_info=&#8221;{%22gcid-5ef4899f-2d6f-4b0f-8833-d9164fee52ec%22:%91%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22,%22background_color%22%93,%22gcid-56bff3fb-e765-4a78-b152-15a836421100%22:%91%22header_text_color%22,%22header_text_color%22%93,%22gcid-ef29e373-602b-462d-8f41-195237fe824c%22:%91%22background_color__hover%22%93}&#8221; transform_styles__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover_enabled=&#8221;on|hover&#8221; box_shadow_spread__hover=&#8221;9px&#8221; background_enable_color__hover=&#8221;on&#8221; background__hover_enabled=&#8221;on|hover&#8221; transform_scale__hover=&#8221;105%|105%&#8221; transform_scale__hover_enabled=&#8221;on|hover&#8221; transform_translate__hover_enabled=&#8221;on|desktop&#8221; transform_rotate__hover_enabled=&#8221;on|desktop&#8221; transform_skew__hover_enabled=&#8221;on|desktop&#8221; transform_origin__hover_enabled=&#8221;on|desktop&#8221; background_color__hover=&#8221;#ebf4f1&#8243;]<\/p>\n<p>Grief after a bereavement, secondary loss,\u00a0 how to cope and when to seek help.<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; 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