Rareminds CEO Kym Winter talks to Kelly Kearley, Patient Group Manager from PTEN UK & Ireland Patient Group
News & Articles
Keep up to date with our news and views from rareminds, our partners and the rare disease community.
EURORDIS position paper on mental health & wellbeing
We are so pleased to have been involved in this much-needed initiative on mental health and wellbeing in the rare condition community by EURORDIS-Rare conditions Europe, led by Matt Bolz-Johnson. The paper emphasises the need for specific actions across all policy...
Episode 2 of the Rareminds Podcast is out!
Rareminds CEO Kym Winter talks to Julia Segal Couples Therapist on the Rareminds team about the ways living with, or caring for someone with, a rare condition can impact your couple relationship.
Article in New Psychotherapist
We are delighted to have featured in the recent UKCP ‘New Psychotherapist’ magazine. Read the article with our Founder Kym Winter on page 37
Rareminds new Wellbeing Hub is live!
Whether you have been living with your condition for some time, or if you are currently facing a particularly emotionally challenging period, we hope you find something in our Wellbeing Hub that will be helpful.
Rareminds attend ‘European Conference on Rare conditions and Orphan Products’ (ECRD)
Rareminds CEO Kym Winter and Head of Development, Lauren Roberts, attended the 12th ECRD, with Kym taking part in a panel discussion about ‘No Health Without Mental Health’ to explore ‘what works for you’ and co-creation of a mental health...