About Rareminds

Supporting you to support your rare disease community

We are a not-for-profit Community Interest Company (CIC) and have been providing online counselling and wellbeing services for rare disease charities since 2014.

Our mission is to provide affordable, timely access to highly specialised counselling and wellbeing resources, and raise awareness about the emotional impact of living with rare conditions.

We support professionals and patient leaders in making mental health integral to rare disease patient care. 

The psychosocial impact rare disease

Living with a rare disease is psychologically and emotionally demanding. The Rare Disease UK Report: Living with a Rare Condition: the effect on Mental Health (2018) showed that living with a rare disease is challenging not just physically, but emotionally. The diagnosis of a rare disease emotionally impacts not just individuals, but families , relationships, finances , work-life and future choices. It frequently involves low mood, anxiety, emotional exhaustion, and may also at times lead to suicidal thoughts or intention.

 

 

We are also aware that rare diseases are diverse and complex.  We will work closely with your particular organisation or service to understand more about, and address appropriately, the impact of your particular rare disease within your own unique community.

Find out more about professional, fully managed Telephone and Video Counselling Services and Additional Services.

Meet the Team

All our clinical staff are members of either BACP (British Association of Counsellors and Psychotherapists) UKCP (United Kingdom Council for Psychotherapy) or another approved professional body.  All undertake to work with us in accordance with their professional body’s Codes of Ethics and Good Practice.

Trainee / newly qualified professionals

From time to time we offer placement opportunites to carefully selected and closed supervised Advanced Diploma (or equivalent) counselling or psychotherapy trainees in the final stages of training.  We also offer Honorary Placements to newly qualified clinicians looking to acquire experience with this client group and/or working towards professional accredition. If this sounds like you, please get in touch.

Associated Professionals

Rareminds is part of an established network of senior practitioners known to us and who may intermittently be approached to undertake additional work, training or consultancy as:

  • Group facilitators
  • Reflective Group Leaders (for healthcare professionals and frontline staff)
  • Organisational Consultants
  • Pain Management Specialists
  • Palliative / End of Life care clinicians

Our mission is to provide specialised counselling and wellbeing resources to support the mental health of your community

Our Client Charities

"Counselling has now become a core service that we offer . We have benefitted hugely as a charity not just from the direct support to our members, but by working with rareminds counsellors for a wide range of events, trainings and research"

Cathy Bouvier | CEO | NCUK

Supporting you to support your rare disease community

01727 752147

High Street, St Albans, Hertfordshire, UK